As the years have gone by since my initial diagnosis of Cerebellar Ataxia I have had to adapt and learn new ways of doing things. I say this so easily, like all of this was a breeze, and came naturally. Like adjusting my life to fit this disease was as simple as literally falling off a log. Another quaint little saying that would seem to fit nicely here is the one about teaching an old dog new tricks because I am finding that I am in a constant battle with my second nature. That if I continue to bounce from moment to moment like I used to do, I will just continue to injure and frustrate myself. Most of the simple things that a lot of people don't even have to think about, like writing, tying your shoes, and descending stairs, have become obstacles for me that require thought and effort. I have had to slow way down and learn new ways to accomplish simple tasks.
I have learned new methods for dealing with challenges. In this blog, I will deal with the three that I just mentioned. These particular methods will not work for everyone and are only being shared with you as possible alternatives. The first one that I will show you concerns the subject of writing and centers on the issue that I have of being able to write legibly, clear enough so that even I can read it. Most of the time I can decipher what I have written, but there are those times when I find a note that I've scribbled down and I will have no clue what it says. It could be a grocery list, an idea for a blog, or a ransom note. It could be a note to my wife, saying that a friend called, or it could be an abstract cosmic drawing of the Milky Way.
This method is new to me and will take some practice. It is known as the two-handed method, and I have included pictures of my one-handed writing and pictures of the two-handed writing. The idea, as you will see, is the use the index finger of the opposite hand to help guide and direct the writing hand. This will result in more of a flow and smoother process. It works for me, and with some practice, it might actually help, but again, it will not be for everyone.
One-hand, very shaky |
Somewhat smoother....but will take some practice. |
The next subject that I will tackle,(not literally), will be the issue of stairs. I have shared in several of my blogs just exactly how I feel about stairs. Refer to my last blog, Metaphorically Running From A Bully if you have somehow been misinformed and are under the current impression that I love the challenge that stairs afford and look forward with deep anticipation to the next time that we will meet again. There are three ways in which I approach my carport stairs. Actually, there are four methods that I use to descend my stairs, but as one of the methods involves tripping, falling, and pain, I will skip that one. Besides, you can probably figure that one out for yourself. I also decided that I don't need to illustrate these methods like I did the writing example because these are all pretty straight forward. One method has to do with walking backward. I use this approach very successfully on my carport steps but don't think that it would work for me on a long staircase. However, I have heard others say that this method works well for them. I think the idea behind,(no pun intended....no really.... .....okay fine, believe what you want), descending backwards is that gravity makes us lean forward and topple easier, but,(no comment), if we lean forward facing the stairs we won't fall, or at least as far. My problem with this method is that I lose sight of my feet, and begin to panic. Until I remember that my feet are fine, they are still there, I just can't see them at the moment. All joking aside, though, this method actually does not work for me on long staircases, but I mention it as a possibility.
Another method that I use,(with varying success), is the traditional approach.....straight forward. Only, I hang on to anything stable and move very slowly, which unfortunately is still not enough sometimes to keep me from stumbling. During these times I have begun to use the next method, which is to turn sideways to descend. I still have to hang on to something, but it seems to really help when I am going down my carport steps.
The last subject of tying my shoes I will illustrate. As a kid, I learned to tie my shoes a certain way but was always having problems. Somehow I was continually tying knots in the individual shoe strings and ruining them. I couldn't tighten my laces because the knots that I had created would not fit through the eye holes in the shoes. It also made tying my shoes more difficult as the knots would get in the way of pulling the bow tight. So I came up with my own style of tying my shoes and have used that method ever since. I still tie my own shoes, and even though it has become frustrating, continue and will keep doing so for as long as I can. I have recently learned another method, which I read about, and is a way that a Kindergarten teacher came up with and uses to teach her students. I have not used it very much, but on days when I find that I am getting very frustrated with my usual way of tying, will switch over to this method.
There is more than one way....and you might need to become creative to come up with a method, or way of doing a task, that works for you. It's good to try a particular way of doing something that others may claim is the best way, but if it doesn't work for you, then that's alright. The key is to keep trying, my friends. Do not let yourself quit because it has become difficult or frustrating.
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