here is a link to the audio version, in case you would rather listen to this blog: https://www.youtube.com/watch?v=BdnDQbY0WjE
There are a few things in my life; I have come to realize, that remain to be incredibly consistent. One of which is the invitations to do bodily harm that I receive from gravity. I keep trying my best to ignore its hospitality, but it never seems to be discouraged, relentlessly sending out invites every day. There are days when I may have received dozens by the end of the day. These invitations remind me in a lot of ways of junk mail, both the kind that I receive in my physical mailbox and the type that comes to me digitally. I don't have any real need for all of the useless flyers and adds, and frankly, I wish that they would just stop.
The digital version of junk or unsolicited mail is referred to as Spam, so I guess in a lot of ways you could say that gravity, for a balance-challenged individual such as myself, is a form of Spam. The invitations vary of course, but the desired result is always the same, that I will fall hard on the ground, bounce off a door, wall, or tree, or in some other way injure myself. Gravity, you see, is very creative....and the invitations usually read along the same lines, which is something like, " Dear Mr. Wolfer, your presence is desired on the ground, and you are cordially invited to lose your balance and/or, by any means available at present, cause bodily harm to yourself ".
Of course, I am always trying to evade gravity and avoid attending the events to which I have been invited, but it is not as easy as it seems. The summons can come from anywhere, at any time. It's not like I can just forget to leave a forwarding address and hope the law of physics will not find me. It reminds me of a teacher I had in 5th grade. Her name was Mrs. Beeson, and I'm reminded of her because....as a student in her classroom I couldn't get away with anything. I often wondered if she had eyes in the back of her head because it seemed like she saw everything.
So I suppose that you are thinking to yourself at this point that I could just stop checking my mailbox thereby successfully avoiding the invitation, right? I mean, I can't go if I never know I was invited in the first place, correct? Well, in theory, you would definitely be on to something....if gravity only used the mail. But apparently, it has decided that it would be much more efficient using a multiple-pronged approach, or attack. It has also been making soliciting phone calls that I thought may be wrong numbers that someone called by mistake because when I answer no one is there, but it must be gravity calling and leaving some kind of subliminal message because I will almost immediately drop, trip over, fall down, or run into something. And as far as I know, there is not a do-not-call list that I can get on to make it stop.
Nothing, it would seem, will stop gravity, but just in case it can't reach me through the mail or by phone, it has a third strategy. The squirrelly little fella will show up at my door under the disguise of a salesman. He MAY think he has me fooled, trying to sell me on his particular brand of carpet cleaning or home security system, but I know it's him. I tried putting up a No Solicitation sign, but somehow the little weasel always seems to get through.
So, in the end, it would seem that I really, besides tying myself to the top of a flagpole and having my meals fed to me on the end of a long stick, am out of strategies, or options, for avoiding the invitation. But I am always open to suggestions....got any?
Wednesday, June 18, 2014
Tuesday, June 10, 2014
In Need Of A Tune-Up
here is a link to the audio version, in case you would rather listen to this blog: https://www.youtube.com/watch?v=GE-_8EhU9Qs
Going in to see a Neurologist is, in a lot of ways, like taking your car to the mechanics. You can't just give the mechanic your car key and say, "The car won't go." They need specifics, something along the lines of, "I'm starting to backfire and stutter....uh, I mean the car's exhaust is starting to backfire and stutter when I creep along or go slower than five miles an hour. Which seems to be happening a lot more lately, uh, the creeping along thing, I mean." Actually the more I think about it, the more similarities I see between my visits to the Doctor and my visits to the Mechanics. I'm also beginning to have a clearer understanding of why the car is starting to groan in protest whenever I step on the gas, asking for the extra power needed to successfully get to the other side of the speed bump that's so smugly trying to block my path. My zero-to-sixty has also changed. No longer do I hit the ground running. Oh, I still hit the ground,(inevitably and more often than I used to), but my zero-to-sixty is now closer to zero-to...... all day.
If I let my imagination go, I can begin to see that there are a lot of parallels between the workings of an automobile and my physical state. There are times when the brakes squeak, the gas mileage goes down, and the vent only blows hot air. The tires wear out, the upholstery begins to wear thin and rip, and the new car smell is nothing more than a memory of a distant memory. Of course, there is also the complaint that the car just does not handle the way it used to. Some of this is because the car is getting older and has been around the block a few times. To be entirely truthful, though, it never was a really great car, from the very beginning. Nothing sleek and sporty, like a Porsche, Corvette, or Lamborghini. Never a muscle car, like a Mustang, Camaro, or Charger. I was always closer in resemblance to a Maverick, Volkswagon Bug, or AMC Pacer. There is also some likeness to a Chevy Chevette that Melissa and I owned when we were first married. We traded it in after about a year, and one of the dealership lot attendants was a friend that Melissa had known from High School. We asked him later about that car, and he told us that they couldn't even get the thing in reverse to get it around to the back of the building! That's the way my Ataxia is......somethings work and some things don't. My brain is like a clutch, sometimes it engages, and sometimes...." son, it looks like you've burned up your clutch"!
Well, if I'm going to compare myself and Ataxia to a car, then the next obvious subject would be to talk about breakdowns. So, there I am, stuck, and after a thorough examination of the facts, conclude that the car won't go. So what do I do? Call a tow truck. In my time, I have experienced two kinds of trucks. One reminds me of my walker because the car is only half lifted up, leaving two wheels still engaging the ground, and basically, it just rolls along behind the truck. The other method is the wheelchair of the towing world because the whole car is pulled up onto a flatbed truck and now has movement, just on top of another vehicle.
Fortunately, as with a car, there are routine maintenance steps that can be taken. No, it will not convert my Volkswagen Bug into a Porsche, but it will keep me on the road. Ataxia has many forms, and no two people are entirely affected the same. However, there are similarities to some of what we deal with because of this Neurological disease/condition, such as, issues with balance, difficulty swallowing, writing, or talking. There are also different ways that people have found to deal or survive in the face of their personal struggle with this condition, or disease. I would like to share with you the four ways in which I have come to look at and live with, my Ataxia. I have said these before, but as a way of reminding myself, I will repeat them.
1. Acceptance. I was diagnosed eleven years ago at the age of 38. It came as quite a shock, and although I acknowledged that the Doctor was talking to me, the whole thing had a nightmarish quality to it. Honestly, I think I lived in denial for quite a while. I would explain to family and friends what Cerebellar Ataxia was and talk about my MRI openly, and on the outside, I looked like I was taking it well, but inside I was a jumble of raging emotions. Anger, frustration, sadness, and confusion. I really just wanted everything to be like I had never even gotten the news and continued to try and do everything on my own. But when I began to see the changes in myself, that all I was really doing was making things harder for myself and others, and even setting myself up for otherwise completely avoidable injuries, that was when I had to stop and reevaluate. I permitted to be who I am and to embrace the opportunities I had before me that were only there because of my Ataxia.
2. Attitude. Once I accepted the reality of my Ataxia, I quickly made the connection to my disposition. It was one thing to understand my limitations, but it was quite another to be happy IN SPITE OF the current physical reality. I say physical reality because that is what it is. You are free to believe what you want to believe, my friends, but I believe that there is a Spiritual reality where Ataxia will no longer be a part of me. In fact, it is largely the reason why I can laugh in the face of adversity and joke about my daily struggles. The other reasons are because laughter keeps me from crying, and also helps me from making the loved ones around me miserable. I will not live a life that is embittered by struggles, or otherwise. I don't always succeed at having and maintaining a positive attitude, but I will tell you that when I do, my limitations are a little more bearable to live with.
3. Exercise. After my diagnosis in 2003, the one thing I discovered was that it was crucial that I kept moving. My motto soon became," if I don't use it, I'll lose it'. For the first nine years after my diagnosis I worked full-time, so constant movement and exercise weren't a problem. But, I lost that job in 2012, due to the advancement of Ataxia, and as I stated in my last blog, the concern became what I would do and how I would keep from degenerating faster. The job that I was doing at the time was physically demanding and wiping me out, but at least it was providing constant exercise for me. So at that point, I began a daily walking regime. I continued doing as many things around the house as possible and also began to volunteer at different places as a way to stay active. My motto is still the same, and I continue to do whatever I can and will do it until I can't do it anymore.
4. Support. I cannot accurately describe to you how big of a role this has played in my life or how vital I believe support to be. For the first nine years of my personal struggle with Ataxia, I faced it with the love and support of family, but I did not know anyone else like me. When I reached out and found a support group, I was amazed, and it really felt good to be with other people who knew my struggles, not because they were sympathizing with me, but because they were living in the same reality as I was. It was an inspiring time for me, and I began to seek out any avenue that I could that would put me in touch with others whose struggle is like mine. I now have friends all over, not just the states, but the world. I can't say for sure why this helps, but somehow it just does. It also is a very encouraging thing to be able to ask a question about your symptoms, or about various medicines, or any other general issue that may come up in your battle, and receive advice, encouragement, and support, sometimes in a humorous way. And the beauty of it all is that there is never a dumb question. Just friendship and unity in the knowledge that we all have had our lives disrupted by a variation of the same unwanted guest. Any advice I have for someone struggling would be to find a source of support.
Our struggle is not easy my friends, but I want to encourage you all, whatever stage you're at to continue to fight, grab any hope you can and hang on, and know that you are not alone. My best to all of you.
Going in to see a Neurologist is, in a lot of ways, like taking your car to the mechanics. You can't just give the mechanic your car key and say, "The car won't go." They need specifics, something along the lines of, "I'm starting to backfire and stutter....uh, I mean the car's exhaust is starting to backfire and stutter when I creep along or go slower than five miles an hour. Which seems to be happening a lot more lately, uh, the creeping along thing, I mean." Actually the more I think about it, the more similarities I see between my visits to the Doctor and my visits to the Mechanics. I'm also beginning to have a clearer understanding of why the car is starting to groan in protest whenever I step on the gas, asking for the extra power needed to successfully get to the other side of the speed bump that's so smugly trying to block my path. My zero-to-sixty has also changed. No longer do I hit the ground running. Oh, I still hit the ground,(inevitably and more often than I used to), but my zero-to-sixty is now closer to zero-to...... all day.
If I let my imagination go, I can begin to see that there are a lot of parallels between the workings of an automobile and my physical state. There are times when the brakes squeak, the gas mileage goes down, and the vent only blows hot air. The tires wear out, the upholstery begins to wear thin and rip, and the new car smell is nothing more than a memory of a distant memory. Of course, there is also the complaint that the car just does not handle the way it used to. Some of this is because the car is getting older and has been around the block a few times. To be entirely truthful, though, it never was a really great car, from the very beginning. Nothing sleek and sporty, like a Porsche, Corvette, or Lamborghini. Never a muscle car, like a Mustang, Camaro, or Charger. I was always closer in resemblance to a Maverick, Volkswagon Bug, or AMC Pacer. There is also some likeness to a Chevy Chevette that Melissa and I owned when we were first married. We traded it in after about a year, and one of the dealership lot attendants was a friend that Melissa had known from High School. We asked him later about that car, and he told us that they couldn't even get the thing in reverse to get it around to the back of the building! That's the way my Ataxia is......somethings work and some things don't. My brain is like a clutch, sometimes it engages, and sometimes...." son, it looks like you've burned up your clutch"!
Well, if I'm going to compare myself and Ataxia to a car, then the next obvious subject would be to talk about breakdowns. So, there I am, stuck, and after a thorough examination of the facts, conclude that the car won't go. So what do I do? Call a tow truck. In my time, I have experienced two kinds of trucks. One reminds me of my walker because the car is only half lifted up, leaving two wheels still engaging the ground, and basically, it just rolls along behind the truck. The other method is the wheelchair of the towing world because the whole car is pulled up onto a flatbed truck and now has movement, just on top of another vehicle.
Fortunately, as with a car, there are routine maintenance steps that can be taken. No, it will not convert my Volkswagen Bug into a Porsche, but it will keep me on the road. Ataxia has many forms, and no two people are entirely affected the same. However, there are similarities to some of what we deal with because of this Neurological disease/condition, such as, issues with balance, difficulty swallowing, writing, or talking. There are also different ways that people have found to deal or survive in the face of their personal struggle with this condition, or disease. I would like to share with you the four ways in which I have come to look at and live with, my Ataxia. I have said these before, but as a way of reminding myself, I will repeat them.
1. Acceptance. I was diagnosed eleven years ago at the age of 38. It came as quite a shock, and although I acknowledged that the Doctor was talking to me, the whole thing had a nightmarish quality to it. Honestly, I think I lived in denial for quite a while. I would explain to family and friends what Cerebellar Ataxia was and talk about my MRI openly, and on the outside, I looked like I was taking it well, but inside I was a jumble of raging emotions. Anger, frustration, sadness, and confusion. I really just wanted everything to be like I had never even gotten the news and continued to try and do everything on my own. But when I began to see the changes in myself, that all I was really doing was making things harder for myself and others, and even setting myself up for otherwise completely avoidable injuries, that was when I had to stop and reevaluate. I permitted to be who I am and to embrace the opportunities I had before me that were only there because of my Ataxia.
2. Attitude. Once I accepted the reality of my Ataxia, I quickly made the connection to my disposition. It was one thing to understand my limitations, but it was quite another to be happy IN SPITE OF the current physical reality. I say physical reality because that is what it is. You are free to believe what you want to believe, my friends, but I believe that there is a Spiritual reality where Ataxia will no longer be a part of me. In fact, it is largely the reason why I can laugh in the face of adversity and joke about my daily struggles. The other reasons are because laughter keeps me from crying, and also helps me from making the loved ones around me miserable. I will not live a life that is embittered by struggles, or otherwise. I don't always succeed at having and maintaining a positive attitude, but I will tell you that when I do, my limitations are a little more bearable to live with.
3. Exercise. After my diagnosis in 2003, the one thing I discovered was that it was crucial that I kept moving. My motto soon became," if I don't use it, I'll lose it'. For the first nine years after my diagnosis I worked full-time, so constant movement and exercise weren't a problem. But, I lost that job in 2012, due to the advancement of Ataxia, and as I stated in my last blog, the concern became what I would do and how I would keep from degenerating faster. The job that I was doing at the time was physically demanding and wiping me out, but at least it was providing constant exercise for me. So at that point, I began a daily walking regime. I continued doing as many things around the house as possible and also began to volunteer at different places as a way to stay active. My motto is still the same, and I continue to do whatever I can and will do it until I can't do it anymore.
4. Support. I cannot accurately describe to you how big of a role this has played in my life or how vital I believe support to be. For the first nine years of my personal struggle with Ataxia, I faced it with the love and support of family, but I did not know anyone else like me. When I reached out and found a support group, I was amazed, and it really felt good to be with other people who knew my struggles, not because they were sympathizing with me, but because they were living in the same reality as I was. It was an inspiring time for me, and I began to seek out any avenue that I could that would put me in touch with others whose struggle is like mine. I now have friends all over, not just the states, but the world. I can't say for sure why this helps, but somehow it just does. It also is a very encouraging thing to be able to ask a question about your symptoms, or about various medicines, or any other general issue that may come up in your battle, and receive advice, encouragement, and support, sometimes in a humorous way. And the beauty of it all is that there is never a dumb question. Just friendship and unity in the knowledge that we all have had our lives disrupted by a variation of the same unwanted guest. Any advice I have for someone struggling would be to find a source of support.
Our struggle is not easy my friends, but I want to encourage you all, whatever stage you're at to continue to fight, grab any hope you can and hang on, and know that you are not alone. My best to all of you.
Thursday, May 22, 2014
Sweating The Small Stuff
here is a link to the audio version, in case you would rather listen to this blog: https://www.youtube.com/watch?v=iW8o8JR9hUU
Let me first begin by stating that I have full knowledge of what the saying, don't sweat the small stuff, means. It's just that for myself the saying is a bit more literal than to worry about minute details. Sweating is not just a fancy term that I am using to refer to or mean something else, but it is the actual physical act of sweating like I'm sitting in a sauna with my clothes on, (which would be a strange thing to do). I'm finding that it is the little things that are leading me to feel as if I have just participated in an Iron-Man competition, (in reality my speed would be more of a Wet-Paper-Bag competition).
If you are old enough to remember the payphone, then you will of course, also remember the phone book. Years and years ago,(back in the 80's), it became a trend to show your strength by ripping a five-hundred-page phone book in half. Doing so, also served as a form of intimidation and was a warning to all phone books that you weren't beneath tearing them apart in case any of them happened to be thinking of attacking you when your attention was averted. Now I don't want to brag here but once I was actually able to tear a ten-page document in half. Currently, I feel I am carrying on in that paramount tradition whenever I try to remove the paper cover off of the straw that comes with the drink that I've purchased. Most people can grasp the little flap at the top of the straw and tear that paper off within about half a second, but I feel like I need one of those industrial size grabbers, you know, the ones you see guys using on the side of the freeway to pick up trash. It feels like I need to order one every time I order a drink. It's either that or a new brain so that I have the motor skills required to grasp the quarter inch flap of paper on the end. "Sir, would you care for any fries with your iced tea?" "No thank you...but would you happen to have the ability I'm going to need to remove my straw from its Fort Knox-like paper encasing?" It seems to me that if one of these fast food chains wanted to really make a tremendous happy meal that they should include a new Cerebellum with each order instead of a toy. At least make it an option!
For those of us who take more than thirty- seconds to unwrap a piece of chewing gum, again, I don't mean to brag, but I have come up with an idea for gum manufacturers. They really should start making the foiled wrapper chewable and the same artificially- enhanced flavor as the gum or some strangely complimentary flavor, like broccoli, so that we could just pop the whole thing in our mouth. I chew sugar-free gum, but I wouldn't have to chew it because I lose 35 calories just trying to wrestle the gum out of the wrapper. At times I've found myself wondering if there is not a hotline number you can call for assistance and helpful tips on how to unwrap a single stick of gum.
This next one I am actually not sure could be done, but it would make my life a lot simpler if there were a television remote available that did everything with just had one button. You might think the remote is simple, (and for my kids it is), and you might wonder why, after using the same remote for the last ten years, it is so difficult? It is just that, by the time I figure it out the season premiere of the new show we want to check out is now through its second season and showing reruns. And on top of that, I am still trying to figure out where to point the thing and the perfect angle for maximum efficiency. Do I aim it straight at the television? Would it work better if I bounce the signal off a wall or the dog? Should I just skip the middleman and go outside, aim up, and hope I hit a satellite? At this point, a game of Charades is looking like a very desirable option and a definite possibility.
Why is it that the small stuff, the things that should be easy, and quickly done in five minutes or less, are the things that end up consuming the whole day? I don't know the answer, but as I continue to struggle with the things that should come quickly and as I am wiping the sweat out of my eyes from wrestling with one of these simple tasks, I am reminded not to sweat the small stuff.
My family enjoying a day at the Oregon Coast. From left to right is Megan, Me, Jessica, Kameron, and my wife, Melissa. We were accompanied by our 2 dogs, Ollie( by Megan), and Lucy(held by Jessica).
Let me first begin by stating that I have full knowledge of what the saying, don't sweat the small stuff, means. It's just that for myself the saying is a bit more literal than to worry about minute details. Sweating is not just a fancy term that I am using to refer to or mean something else, but it is the actual physical act of sweating like I'm sitting in a sauna with my clothes on, (which would be a strange thing to do). I'm finding that it is the little things that are leading me to feel as if I have just participated in an Iron-Man competition, (in reality my speed would be more of a Wet-Paper-Bag competition).
If you are old enough to remember the payphone, then you will of course, also remember the phone book. Years and years ago,(back in the 80's), it became a trend to show your strength by ripping a five-hundred-page phone book in half. Doing so, also served as a form of intimidation and was a warning to all phone books that you weren't beneath tearing them apart in case any of them happened to be thinking of attacking you when your attention was averted. Now I don't want to brag here but once I was actually able to tear a ten-page document in half. Currently, I feel I am carrying on in that paramount tradition whenever I try to remove the paper cover off of the straw that comes with the drink that I've purchased. Most people can grasp the little flap at the top of the straw and tear that paper off within about half a second, but I feel like I need one of those industrial size grabbers, you know, the ones you see guys using on the side of the freeway to pick up trash. It feels like I need to order one every time I order a drink. It's either that or a new brain so that I have the motor skills required to grasp the quarter inch flap of paper on the end. "Sir, would you care for any fries with your iced tea?" "No thank you...but would you happen to have the ability I'm going to need to remove my straw from its Fort Knox-like paper encasing?" It seems to me that if one of these fast food chains wanted to really make a tremendous happy meal that they should include a new Cerebellum with each order instead of a toy. At least make it an option!
For those of us who take more than thirty- seconds to unwrap a piece of chewing gum, again, I don't mean to brag, but I have come up with an idea for gum manufacturers. They really should start making the foiled wrapper chewable and the same artificially- enhanced flavor as the gum or some strangely complimentary flavor, like broccoli, so that we could just pop the whole thing in our mouth. I chew sugar-free gum, but I wouldn't have to chew it because I lose 35 calories just trying to wrestle the gum out of the wrapper. At times I've found myself wondering if there is not a hotline number you can call for assistance and helpful tips on how to unwrap a single stick of gum.
This next one I am actually not sure could be done, but it would make my life a lot simpler if there were a television remote available that did everything with just had one button. You might think the remote is simple, (and for my kids it is), and you might wonder why, after using the same remote for the last ten years, it is so difficult? It is just that, by the time I figure it out the season premiere of the new show we want to check out is now through its second season and showing reruns. And on top of that, I am still trying to figure out where to point the thing and the perfect angle for maximum efficiency. Do I aim it straight at the television? Would it work better if I bounce the signal off a wall or the dog? Should I just skip the middleman and go outside, aim up, and hope I hit a satellite? At this point, a game of Charades is looking like a very desirable option and a definite possibility.
Why is it that the small stuff, the things that should be easy, and quickly done in five minutes or less, are the things that end up consuming the whole day? I don't know the answer, but as I continue to struggle with the things that should come quickly and as I am wiping the sweat out of my eyes from wrestling with one of these simple tasks, I am reminded not to sweat the small stuff.
My family enjoying a day at the Oregon Coast. From left to right is Megan, Me, Jessica, Kameron, and my wife, Melissa. We were accompanied by our 2 dogs, Ollie( by Megan), and Lucy(held by Jessica).
Wednesday, May 7, 2014
The Big Brother I'll Miss....Terribly.
As many of you know, I lost my big brother, Bob, on 5-3-14. This post is dedicated to him. It is not about my daily life and struggles with Ataxia, but about my memories of the brother I had and loved.
The date of December 19th, 1964 holds no significance for me, at least it never did before. Other than the fact that this particular day happened to be my 4-day old birthday, which I guess was important to somebody, I know it was to me, and I'm guessing that it probably was too my parents, as well. But even more noteworthy was that this was the day that I came home for the first time and met my 2 older brothers, Bob who was 5 at the time, and Jon who was 4. I distinctly remember looking at the oldest one and thinking, "is that really what I'm going to look like"? I didn't want to look like that. My mature 4-day old mind assessed him as being rather tall for his age, and kind of skinny. Now, however, this 49-year old mind can tell you honestly that I count any sort of resemblance to my big brother to be an honor and something to be cherished.
Jon is holding me, and Bob is on my right.
I grew up, I suppose, like a lot of other kids who had older brothers or sisters. I idolized everything about Bob and wanted to do all the things that he did. He was the first one to introduce me to the amazing world of music, as he spun 45's on a little turntable. A few years later he was able to branch out and play cassettes on a monotone tape player. I have many, many fond and wonderful memories of those days, but the one that will always be with me was the time when I was 5 or 6 and laying on the couch because I was sick. Bob played my favorite song for me and would rewind it when it was over and play it again and again. I asked Bob about this years later, and he didn't remember doing it, but I will never forget and every time that songs plays, I remember that day, years ago. And now In the light of Bob's passing that song will mean even more to me and probably bring tears with the flood of memories. In our later years, we started a band in our basement. Bob loved the drums and kept the timing and rhythm while a friend, Dave Yoder, played the electric guitar, and I played the bass.
Here, Bob appears to be imagining that he is astride his first drum stool and keeping the beat.
From very early on Bob also had a profound love for cars and had a fascination with anything on four wheels. His two biggest passions surrounding the automobile were classic hot rods and trucks. He took great personal pride in his cars, and those who knew him well will remember that he was always tinkering with something and regularly washing and waxing his cars. He spent a major portion of his life driving delivery vans and trucks, his last job was driving a large delivery truck for Safeway.
MAN!....what a RIDE!!!(...." a serious but I'm thinkin Dad that maybe we should tweak the suspension")
As impossible as this may sound, things were not always defined by brotherly affection or done with the other's personal welfare in mind. I was, as most little brothers are, a severe cramp in his style. When he would have friends over he would warn me to leave them alone, but despite any common sense, and maybe a little bit of a death wish on my part, I would always try to creep as close as I could and spy. Of course, Bob would always catch me and then the process would begin with him showing his feelings concerning my latest choice of activity. This usually involved Bob sitting on my chest with a hand on each of my shoulders as he leaned over me, his face about a foot above mine. He would then snort and snuffle and work up a huge spit/snot wad in his mouth, which he would then allow to dribble out of his mouth. Being completely pinned down, all I could do was helplessly watch as the glob would inch closer and closer to my face. After a sufficient amount of time and mental torture, he would suck the descending terror back up. I would say that he was successful about 50 to 60 percent of the time.
To say that Bob had a fascination with spit is a understatement. He used to spit 2 equal globs on a flat board and then tilt it up at an angle to see which one would slide to the end the fastest. He called these, "spit races" and was always amused. I don't remember any betting going on, like at a race track, but that's probably due to the fact that we didn't have any money as kids. Another memory surrounding spit and my brother Bob had to do with a Brittany pup that he called Spit because of it's love for Bob's liquid offerings and which became the biggest and fattest puppy in the liter of 8 or 9 from my Dad's dog Ginger. He would also spit on our toy racetrack so the cars would peel out and spin like they do on the real racetracks.
Yep, that was our Bob!
One of the classic older-brother to younger-brother interactions happened on a hot summer day when I was about 9. My dad had not yet put up a fence, which would divide the field behind his house in two, allowing the cows to only graze on half so the other side could grow. So the three boys,(Bob, Jon, and I), were sent out to the field to be shepherds of sorts, staggering ourselves down the middle of the field. The idea being that we would prevent the herd from crossing into the wrong half. There were, however, two serious flaws in this plan. The first one being that I was deathly afraid of the cows, and the second one being that the biggest steer chose me as the weakest link and began to run straight at the hole beside me. It would mean a lot of extra running and work for us if the cows got into the wrong side of the field, but I would not run in front of the approaching steer to head it off, so Bob began to yell and tell me in a very positive and helpful way just what he thought of my shepherding skills . I was scared and stood there watching as the steer just ran right past me. Bob, who was up hill and about 30 feet away from me, emphasized his thoughts by throwing his pitchfork straight at me. I of course went into immediate evasive maneuvers and just stood there, watching as the pitchfork arched through the air and speared into my leg. He then ran, scooped me up, and became the most attentive brother ever. He carried me all the way back up to the house with instructions that I was not to tell the parents. Only one tine of the pitchfork had entered my leg and it had bounced out so it wasn't that bad.
Look at that face.....could he really have thrown a pitchfork? Oh yes....
I have so many memories I just don't know where to stop. I could go on and on but instead of that I will just state how I feel. It is a devastating loss. Bob was a wonderful brother and much more than anything I could have ever wanted. But he also became a wonderful husband and then a father and then a grandfather. I will miss him terribly and I will never forget his warmth and sense of humor. Bob was also a very faithful son. He would call my parents every Sunday night just to check in and see how they were doing. Each of us has to be our own person but I cannot help but to hope that I become a little more like my big brother Bob. He was also very active in his church and had a personal relationship with Jesus Christ which brings me comfort knowing that I will see him again someday. Goodbye for now brother, I love you, you will always be in my heart and mind, and you will be missed......terribly.
The date of December 19th, 1964 holds no significance for me, at least it never did before. Other than the fact that this particular day happened to be my 4-day old birthday, which I guess was important to somebody, I know it was to me, and I'm guessing that it probably was too my parents, as well. But even more noteworthy was that this was the day that I came home for the first time and met my 2 older brothers, Bob who was 5 at the time, and Jon who was 4. I distinctly remember looking at the oldest one and thinking, "is that really what I'm going to look like"? I didn't want to look like that. My mature 4-day old mind assessed him as being rather tall for his age, and kind of skinny. Now, however, this 49-year old mind can tell you honestly that I count any sort of resemblance to my big brother to be an honor and something to be cherished.
Jon is holding me, and Bob is on my right.
I grew up, I suppose, like a lot of other kids who had older brothers or sisters. I idolized everything about Bob and wanted to do all the things that he did. He was the first one to introduce me to the amazing world of music, as he spun 45's on a little turntable. A few years later he was able to branch out and play cassettes on a monotone tape player. I have many, many fond and wonderful memories of those days, but the one that will always be with me was the time when I was 5 or 6 and laying on the couch because I was sick. Bob played my favorite song for me and would rewind it when it was over and play it again and again. I asked Bob about this years later, and he didn't remember doing it, but I will never forget and every time that songs plays, I remember that day, years ago. And now In the light of Bob's passing that song will mean even more to me and probably bring tears with the flood of memories. In our later years, we started a band in our basement. Bob loved the drums and kept the timing and rhythm while a friend, Dave Yoder, played the electric guitar, and I played the bass.
Here, Bob appears to be imagining that he is astride his first drum stool and keeping the beat.
From very early on Bob also had a profound love for cars and had a fascination with anything on four wheels. His two biggest passions surrounding the automobile were classic hot rods and trucks. He took great personal pride in his cars, and those who knew him well will remember that he was always tinkering with something and regularly washing and waxing his cars. He spent a major portion of his life driving delivery vans and trucks, his last job was driving a large delivery truck for Safeway.
MAN!....what a RIDE!!!(...." a serious but I'm thinkin Dad that maybe we should tweak the suspension")
As impossible as this may sound, things were not always defined by brotherly affection or done with the other's personal welfare in mind. I was, as most little brothers are, a severe cramp in his style. When he would have friends over he would warn me to leave them alone, but despite any common sense, and maybe a little bit of a death wish on my part, I would always try to creep as close as I could and spy. Of course, Bob would always catch me and then the process would begin with him showing his feelings concerning my latest choice of activity. This usually involved Bob sitting on my chest with a hand on each of my shoulders as he leaned over me, his face about a foot above mine. He would then snort and snuffle and work up a huge spit/snot wad in his mouth, which he would then allow to dribble out of his mouth. Being completely pinned down, all I could do was helplessly watch as the glob would inch closer and closer to my face. After a sufficient amount of time and mental torture, he would suck the descending terror back up. I would say that he was successful about 50 to 60 percent of the time.
To say that Bob had a fascination with spit is a understatement. He used to spit 2 equal globs on a flat board and then tilt it up at an angle to see which one would slide to the end the fastest. He called these, "spit races" and was always amused. I don't remember any betting going on, like at a race track, but that's probably due to the fact that we didn't have any money as kids. Another memory surrounding spit and my brother Bob had to do with a Brittany pup that he called Spit because of it's love for Bob's liquid offerings and which became the biggest and fattest puppy in the liter of 8 or 9 from my Dad's dog Ginger. He would also spit on our toy racetrack so the cars would peel out and spin like they do on the real racetracks.
Yep, that was our Bob!
One of the classic older-brother to younger-brother interactions happened on a hot summer day when I was about 9. My dad had not yet put up a fence, which would divide the field behind his house in two, allowing the cows to only graze on half so the other side could grow. So the three boys,(Bob, Jon, and I), were sent out to the field to be shepherds of sorts, staggering ourselves down the middle of the field. The idea being that we would prevent the herd from crossing into the wrong half. There were, however, two serious flaws in this plan. The first one being that I was deathly afraid of the cows, and the second one being that the biggest steer chose me as the weakest link and began to run straight at the hole beside me. It would mean a lot of extra running and work for us if the cows got into the wrong side of the field, but I would not run in front of the approaching steer to head it off, so Bob began to yell and tell me in a very positive and helpful way just what he thought of my shepherding skills . I was scared and stood there watching as the steer just ran right past me. Bob, who was up hill and about 30 feet away from me, emphasized his thoughts by throwing his pitchfork straight at me. I of course went into immediate evasive maneuvers and just stood there, watching as the pitchfork arched through the air and speared into my leg. He then ran, scooped me up, and became the most attentive brother ever. He carried me all the way back up to the house with instructions that I was not to tell the parents. Only one tine of the pitchfork had entered my leg and it had bounced out so it wasn't that bad.
Look at that face.....could he really have thrown a pitchfork? Oh yes....
I have so many memories I just don't know where to stop. I could go on and on but instead of that I will just state how I feel. It is a devastating loss. Bob was a wonderful brother and much more than anything I could have ever wanted. But he also became a wonderful husband and then a father and then a grandfather. I will miss him terribly and I will never forget his warmth and sense of humor. Bob was also a very faithful son. He would call my parents every Sunday night just to check in and see how they were doing. Each of us has to be our own person but I cannot help but to hope that I become a little more like my big brother Bob. He was also very active in his church and had a personal relationship with Jesus Christ which brings me comfort knowing that I will see him again someday. Goodbye for now brother, I love you, you will always be in my heart and mind, and you will be missed......terribly.
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| From left to right- Myself, Bob, Jon, and our younger brother Andrew |
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| From left to right- Jon, Myself, Bob, and Andy |
Wednesday, April 16, 2014
Just A Theory
I am a person who enjoys music, and usually, when I am buying groceries and going up and down the aisles, I do pay attention to and listen to the music that is being played over the intercom. It's usually pretty tough, but I do try to refrain myself from breaking into dance. There are two reasons for this. The first one being because I don't want to draw attention to myself and I don't want anyone to feel bad about their own dancing skills. But the second reason, which is the most important reason....so actually I guess you could say there really is just one. That reason being because if I even thought about dancing my Ataxia would have me wildly flailing around, I'd lose my balance and take everybody out who happens to be unfortunate enough to be in the frozen food section at the same time as me. The store management would probably think they have a wild hit-man running amok in their store and would most likely call in the swat team to take me out.
Well, I was at the grocery store the other day, and at this particular time, they were playing a song that had approximately four words, of a somewhat suggestive nature, in the whole song. These four words were repeated over and over again, and after the twenty-first time, a theory began to formulate in my mind. I don't know what kind of grades this female artist received in school, but I began to theorize that in a creative writing class at least she most likely had been given the highest marks. I really hate to be so sarcastic towards today's music. I try to like it, I really do and to be honest, there is some good music out there and some very talented musicians. I guess I am just old school and in the words of Bob Seger," Today's music ain't got the same soul, I like that old time rock-n-roll."
But who really knows what kind of grades that particular female artist received in creative writing, it was just a theory. I'm just an old Ataxian that grew up in the 60's, 70's, and 80's and likes the classics. Now, I know that some of you are older and like music from the 40's and 50's, and what is truly ironic is that someday the music that is current right now will one day be considered classic music, and the music that I like will be deemed to be the moldy oldies.
Thursday, April 10, 2014
Dog Days Of Ataxia
here is a link to the audio version, in case you would rather listen to this blog: https://www.youtube.com/watch?v=lSl7xpKB5TI
Pavlov's dog? Who among us hasn't heard of the famous experiments from the 1890's by a renowned psychologist named Ivan Pavlov who worked with dogs and came up with his brilliant Pavlovian theory? Mr. Pavlov used a bell as a neutral stimulus and every time he rang the bell he would give the dog a treat. Until the dog began to associate the ringing of a bell with the treat and the reward was no longer necessary for the dog to respond to the sound. Pavlov and his studies of classical conditioning have become famous.They were the first systematic study and showed us the fundamental laws of learning and conditioning.
Pavlov's dog? Who among us hasn't heard of the famous experiments from the 1890's by a renowned psychologist named Ivan Pavlov who worked with dogs and came up with his brilliant Pavlovian theory? Mr. Pavlov used a bell as a neutral stimulus and every time he rang the bell he would give the dog a treat. Until the dog began to associate the ringing of a bell with the treat and the reward was no longer necessary for the dog to respond to the sound. Pavlov and his studies of classical conditioning have become famous.They were the first systematic study and showed us the fundamental laws of learning and conditioning.
Now I am not a brilliant psychologist, and this is not the 1890's, but the 2014's. However, I have trained my dog in what I would like to present to you as the grand Honey Nut Cheerio experiment, which I am sure will go down in history as bringing some crucial insight into the psyche of the dog.
My theory was that in my dog's mind food would trump everything, including sleep. First, allow me to set the stage for you, so you have a better understanding. Our little male dog Ollie had been sleeping with my daughter, but ever since she went away to college, he has been sleeping in our bed. Melissa and I always get up at five in the morning or shortly after that. We get our coffee and then return to our room where we sit and try to wake up until she has to get ready for work which is about 6 am. I let Ollie stay in bed under the covers until that time, and then I get him up and take him outside. I have a recliner in my room that I sit in and as soon as he comes back inside, he runs into the room and jumps up on the chair and curls up and sleeps until 9 am. Nothing disturbs him, and if he thinks there is a chance that you are going to move him, he will give you a look as you pass by.
Nothing will get him up except for the sound of food hitting the kitchen floor. Every morning I pour myself a bowl of Honey Nut Cheerios and even though I am careful I usually end up spilling some on the floor,(that little reference right there was how I justified putting the word Ataxia in the title for this blog). He quickly learned that I do this and he is always listening for it. This morning, however, I was able to fill my bowl without spilling any of the Cheerios successfully, and so he did not bother himself to move off the chair,(the food has to hit the floor which indicates that it is now primarily free food and up for grabs).
So this is where my experiment came in. I decided to flick a Cheerio onto the floor and see what happened. Sure enough, he came tearing around the corner within about two seconds and was able to zero right in on the fallen object like he had actually witnessed it hit the floor and knew exactly where the little treasure lay. After "spilling" several more Cheerios,( I felt he had made an effort to come so I had to give him a few more), he returned to the chair and went back to sleep. Not only was this an important scientific experiment, but it also served to provide the morning entertainment. Sometimes, it's just about the little things.
Nothing will get him up except for the sound of food hitting the kitchen floor. Every morning I pour myself a bowl of Honey Nut Cheerios and even though I am careful I usually end up spilling some on the floor,(that little reference right there was how I justified putting the word Ataxia in the title for this blog). He quickly learned that I do this and he is always listening for it. This morning, however, I was able to fill my bowl without spilling any of the Cheerios successfully, and so he did not bother himself to move off the chair,(the food has to hit the floor which indicates that it is now primarily free food and up for grabs).
So this is where my experiment came in. I decided to flick a Cheerio onto the floor and see what happened. Sure enough, he came tearing around the corner within about two seconds and was able to zero right in on the fallen object like he had actually witnessed it hit the floor and knew exactly where the little treasure lay. After "spilling" several more Cheerios,( I felt he had made an effort to come so I had to give him a few more), he returned to the chair and went back to sleep. Not only was this an important scientific experiment, but it also served to provide the morning entertainment. Sometimes, it's just about the little things.
Friday, April 4, 2014
Enter The Dragon.....So To Speak
here is a link to the audio version, in case you would rather listen to this blog: https://www.youtube.com/watch?v=a5VFlt9raOE
Based on the title you may think that this writing will be about the great Karate Movie by Bruce Lee, but you would be wrong. However, I have to say that some of my spastic and involuntary moves could easily be interpreted as smooth karate moves. In fact, I'm thinking of opening my own gym, after the highly successful restaurant that I wrote about in a previous blog, Che'SpaZtics, is up and running of course. There I would teach a form of Martial Arts that I will call Attack-Cia Karate. I would practice this form out in public, and I can imagine that the comments may be heard as something like this, "Daddy, look at that funny man, it appears as if he's having a seizure as he walks down the sidewalk." "No son I heard about this, I think he's practicing a new form of handicapped Karate."
Based on the title you may think that this writing will be about the great Karate Movie by Bruce Lee, but you would be wrong. However, I have to say that some of my spastic and involuntary moves could easily be interpreted as smooth karate moves. In fact, I'm thinking of opening my own gym, after the highly successful restaurant that I wrote about in a previous blog, Che'SpaZtics, is up and running of course. There I would teach a form of Martial Arts that I will call Attack-Cia Karate. I would practice this form out in public, and I can imagine that the comments may be heard as something like this, "Daddy, look at that funny man, it appears as if he's having a seizure as he walks down the sidewalk." "No son I heard about this, I think he's practicing a new form of handicapped Karate."
But that has gotten me off subject. What I wanted to write about is not my physical prowess,(I guess that the people who know me well, will laugh at that part), but about my experience with Dragon speak, the program that will follow spoken commands on your computer. I have been using this program for one week now, and so far it has gone very well. In fact, I am dictating this blog right now which is the real reason for the title. Except for a few corrections, which I am sure will get smoothed out over time as I learn to use this program, this blog is being written almost entirely by dictation, (so far the program is about 95% accurate to what I say, of course, that also accounts for about 95% user error).
The very first thing you do when you set this up is to read to it from some sentences that it provides so that it learns your speech patterns. There are numerous language dialects to choose from including slurred English, which I have mine set on as I sound like I have a mouthful of oatmeal sometimes. Okay that's a slight exaggeration there really is no slurred English, but I do find that the process is very smooth and it picks up with excellent accuracy everything that I am saying. I also wanted to address this issue because as Ataxia progresses, the speech can change, and I had a question about what happens if your speech changes or degrades over the years. I found a setting that allows you to reset the program and then retrain it to your current voice patterns. I should also mention here that Dragon is very particular to the voice that does the initial training and set up. Melissa tried to open a browser which is a simple command, and it would not respond to her voice. I gave it the same command, and it began instantly. Dragon is also always on your desktop and listening for your voice all you have to do is wake it up by saying, " Hello, or Hey Dragon," which could be quite entertaining at parties. Gosh, I'm starting to sound like a commercial for Dragon! "Amaze your friends, dazzle your family, be the envy of your neighbors"!
Some of the other things that you can do with this program are to open it up and execute various applications. An example of one of those programs would be Facebook. Dragon will post a status update for you which I have found to be a useful and fun feature. For it to be able to do that, you have to give it your passwords and account login information, so it knows where to go when you ask it to do specific things. It can also play music for you through the computer by either accessing your files on the hard drive or playing music through Spotify. I do not use any music services like Spotify, as everything I like to listen to is already on my hard drive, so I gave it access to play my music through Windows Media Player. Of course, to do that I had to sink all my music to Dragon, and now all I have to do is say play and the name of a song,(which really backfired just now because as I was saying how to do it, a song started playing on my computer)!
So that, in a nutshell.....er, greatly eggshell, shotgun shell.....whatever shell, is Dragon. It really has, in only a week, made my life easier. I would recommend it as a digital assistant. Because all though I can still type and coordinate the computer mouse okay, the use of Dragsubstantiallyincreased my speed, and at a time when a lot of other things seem to be on a decrease, this is a good thing.:-)
The very first thing you do when you set this up is to read to it from some sentences that it provides so that it learns your speech patterns. There are numerous language dialects to choose from including slurred English, which I have mine set on as I sound like I have a mouthful of oatmeal sometimes. Okay that's a slight exaggeration there really is no slurred English, but I do find that the process is very smooth and it picks up with excellent accuracy everything that I am saying. I also wanted to address this issue because as Ataxia progresses, the speech can change, and I had a question about what happens if your speech changes or degrades over the years. I found a setting that allows you to reset the program and then retrain it to your current voice patterns. I should also mention here that Dragon is very particular to the voice that does the initial training and set up. Melissa tried to open a browser which is a simple command, and it would not respond to her voice. I gave it the same command, and it began instantly. Dragon is also always on your desktop and listening for your voice all you have to do is wake it up by saying, " Hello, or Hey Dragon," which could be quite entertaining at parties. Gosh, I'm starting to sound like a commercial for Dragon! "Amaze your friends, dazzle your family, be the envy of your neighbors"!
Some of the other things that you can do with this program are to open it up and execute various applications. An example of one of those programs would be Facebook. Dragon will post a status update for you which I have found to be a useful and fun feature. For it to be able to do that, you have to give it your passwords and account login information, so it knows where to go when you ask it to do specific things. It can also play music for you through the computer by either accessing your files on the hard drive or playing music through Spotify. I do not use any music services like Spotify, as everything I like to listen to is already on my hard drive, so I gave it access to play my music through Windows Media Player. Of course, to do that I had to sink all my music to Dragon, and now all I have to do is say play and the name of a song,(which really backfired just now because as I was saying how to do it, a song started playing on my computer)!
So that, in a nutshell.....er, greatly eggshell, shotgun shell.....whatever shell, is Dragon. It really has, in only a week, made my life easier. I would recommend it as a digital assistant. Because all though I can still type and coordinate the computer mouse okay, the use of Dragsubstantiallyincreased my speed, and at a time when a lot of other things seem to be on a decrease, this is a good thing.:-)
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